Brayden Burns Omaha, NE 3,281 Votes
Brayden is my 8 year old Cub Scout. The motto in Scouts is to Do Your Best! My amazing son does just that. Every day he overcomes obstacles that for anyone else would be simple tasks. He was born with Ehlers-Danlos Syndrome – Hypermobility. Easy bruising, joint pain and dislocations are symptoms that he experiences daily. I assist him with bathing, dressing, mobility and personal hygiene after toilet use. When a joint becomes dislocated he experiences severe pain. To relive this severe pain he pushes the joint back in place. Doing this has caused him to break bones on several occasions.
Learning to walk, he would fall down every few steps as his joints dislocated. As he has grown, he has struggled to walk without pain or dislocations. Now that he is older I am not able to carry him around or support his weight. Brayden started out with a manual wheelchair but we discovered that he was dislocating his wrists and elbows as he pushed himself around. His electric wheelchair now gives him the freedom to move around. He is not able to participate in physical activities with his classmates.
His electric wheelchair can only be used at school as I do not have a way to transport it home at this time. A simple run to the grocery store is not so simple for us. It requires me lifting him into a cart so that I can push him around and save him the pain in his legs. Everywhere we go I have to plan ahead and find creative ways to ensure that he will not be forced to walk in pain.
As he continues to grow he has become more and more dependent on the wheelchair due to the stress in his joints.
I have been able to provide for Brayden as a single parent. Even working full time I am not able to afford a wheelchair accessible vehicle. With his limited mobility and no way for me to move the wheelchair we are often forced to stay home. Having a wheelchair accessible vehicle would enable him to get out and enjoy more of life. Please vote for Brayden.