I have been my daughter’s caregiver for over 15 years. She has a rare neurological disorder called Pitt Hopkins Syndrome. She is mentally and physically disabled. She is totally dependent for everything. My family and friends think I’m a hero, but I’m just doing my job. I think my daughter, Tori, is the super hero. She is happy, loving and patient and just wants to snuggle with you. I have given up my career and marriage for my daughter. I have not worked for 3 years because of Tori’s medical issues. We are living in poverty and it has been a struggle.
I drive a 2000 Dodge Caravan with over 175,000 miles on it. It was even totalled and put back together. The ramp is as wide as the wheelchair so you have to be extra careful to line it up properly. Then I have to recline her 30 degrees to get her in without hitting her head on the doorframe. Then I have to put her up to 20 degrees and get her head up as much as possible to make the wheelchair shorter and easier to move around. Getting her out and down the ramp is even worse.
I have been praying for an opportunity like this and pray you will all vote for Tori.