As if being a mother wasn’t hard enough, when my daughter was just 3 years old from one day to the next she just wasn’t herself. She began to get very tired quickly. So after years of being misdiagnosed over and over finally I was told “Your daughter has limb girdle muscular dystrophy”. Of course I was shocked and wondered why/how could this happened to my baby? So being a single mom I had to learn a lot about muscular dystrophy and make some major adjustments, both physical and psychological.
Our world came to include doctor visits, leg braces, physical therapy and lots of questions. But gradually, muscular dystrophy just became a part of our lives, and we coped with it by learning all we could. She is now 22 years old and so full of life and such an intelligent young woman who deserves all that life has to offer. She’s determined to fulfill all her goals she has set in life despite all the obstacles she has had to overcome and will have to overcome as her life continues in pursuing her career in criminal justice. I remember when she came to me and said she wanted to learn how to drive. Of course I was a little nervous but she never seems to amaze me with everything she does. I can clearly remember that day at the DPS office waiting for her while I cried tears of joy and of course nervousness as I waited for her, then when she drove up she had that passing paper in her hand with so much excitement. I knew she could do it as I have always told her you can do anything you set your mind to, “reach for the stars baby girl”. Right now she is enrolled at the VC College and will have her associates of arts/science in December 2016, she will continue for her bachelors at UHV. I know it has been very challenging getting her to school and back because we have no easy way to transport her scooter. It would be a big help to us and to her if we were so blessed to be given one of these adaptive mobility vans. I think it would change her life tremendously. Because I would like for her to be as independent as possible and explore the world and see that life has no boundaries.